I recently received a phone call from Whittney LaHayne, head varsity volleyball coach at Banks County High School in Homer, Georgia. Coach LaHayne and I had an immediate connection….we both have a son with MCADD. She reached out to me and explained that each year her volleyball team hosts a fundraiser to support a cause. […]
Through Minutes Matter – MCADD, I have had the pleasure of becoming acquainted with Heather Ross Wedding. Thanks to Heather’s introduction, I then had the honor of speaking with Dr. Charles Roe, a man whom each of us that has been touched by MCADD owe a great deal of thanks and appreciation. It is quite […]
Meet Zoe, the daughter of Morgan and Chris, and sister to big brother Ezra (age 3). Zoe was born on September 29, 2018. She was diagnosed with MCADD via Iowa’s Newborn Screening Program. Zoe’s parents received news of Zoe’s abnormal screening results on Day 3 of her life, and immediately proceeded with confirmation of the […]
A Mother’s Joy Turns to Grief in a Matter of Minutes. Learn about Lauren VanNess’s courageous crusade for the timely diagnosis and treatment of MCADD. Everett Boone Johnson “Rhett” was born Saturday August 26, 2017 at 8:11pm at Roanoke Memorial Hospital. When Rhett was born he showed no signs or symptoms of anything abnormal. […]
I recently received an email from Taylor D. with an amazing story to tell. Taylor was born in Nebraska in 1996, before all states in the United States tested for MCADD through Newborn Screening. She wasn’t diagnosed with MCADD until age 2. Taylor’s mom couldn’t get her to stay awake in the morning, and she […]
“I alone cannot change the world, but I can cast a stone across the water to create many ripples.” – Mother Teresa Today I cast that stone, hoping that you all will choose to join me in creating the ripples, leading to waves of change for the future. As parents of children with MCADD […]
