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November 26, 2018  |  By Beth Vannoy  |  In Minutes Matter - MCADD

Zoe’s MCADD Diagnosis

  Meet Zoe, the daughter of Morgan and Chris, and sister to big brother Ezra (age 3).  Zoe was born on September 29, 2018.  She was diagnosed with MCADD via Iowa’s Newborn Screening Program. Zoe’s parents received news of Zoe’s abnormal screening results on Day 3 of her life, and  immediately proceeded with confirmation of the […]

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October 25, 2018  |  By Beth Vannoy  |  In Minutes Matter - MCADD

Rhett’s Story

A Mother’s Joy Turns to Grief in a Matter of Minutes.  Learn about Lauren VanNess’s courageous crusade for the timely diagnosis and treatment of MCADD.   Everett Boone Johnson “Rhett” was born Saturday August 26, 2017 at 8:11pm at Roanoke Memorial Hospital. When Rhett was born he showed no signs or symptoms of anything abnormal. […]

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June 23, 2018  |  By Beth Vannoy  |  In Minutes Matter - MCADD

Inspiration for Living with MCADD

I recently received an email from Taylor D. with an amazing story to tell.  Taylor was born in Nebraska in 1996, before all states in the United States tested for MCADD through Newborn Screening.  She wasn’t diagnosed with MCADD until age 2.  Taylor’s mom couldn’t get her to stay awake in the morning, and she […]

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May 27, 2018  |  By Beth Vannoy  |  In Minutes Matter - MCADD

Welcome to Minutes Matter – MCADD!

“I alone cannot change the world,  but I can cast a stone across the water to create many ripples.” – Mother Teresa Today I cast that stone, hoping that you all will choose to join me in creating the ripples, leading to waves of change for the future.   As parents of children with MCADD […]

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Latest Posts

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    Pharis’s Story Thursday, 26, Mar
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    A Simple Heel Prick: Emma’s Story Sunday, 3, Nov
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    Pharis’s Story Sunday, 27, Oct
  • Faith & Magic Wednesday, 20, Mar
  • Zoe’s MCADD Diagnosis Monday, 26, Nov

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We are a non-profit organization dedicated to saving the lives of newborns by advocating to prevent delays in the detection of MCADD through timely Newborn Screening, by raising awareness of the disorder through education, and to offering a community of support for those diagnosed with and affected by MCADD.

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ABOUT US

Minutes Matter a non-profit organization dedicated to saving the lives of newborns by advocating to prevent delays in the detection of MCADD through timely Newborn Screening, by raising awareness of the disorder through education, and to offering a community of support for those diagnosed with and affected by MCADD.

LEGAL DISCLAIMER

The information provided by Minutes Matter – MCADD does not contain medical advice.  The medical information is provided for general informational and educational purposes only, and is not a substitute for professional medical advice. Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate medical professionals.

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